I Need a Safe Life . . .

 

ARCA provides services to individuals with Prader-Willi Syndrome (PWS) and their families on a statewide basis through The Prader-Willi Syndrome Project for New Mexico – the first full time, professional project of its kind in the country. The Project was established in 1991 with funding from the NM Department of Health.

PWS is a life-threatening genetic developmental disability that effects the functioning of the hypothalamus. Among the results of this disability are muscle weakness, a lack of the satiety signal to stop eating, learning issues, behavior problems and, if not managed correctly, morbid obesity from which people with PWS can and do die.

ARCA’s PWS Project provides specialized consultation and services to 60+ individuals and their families.  Services include identification and referral, PWS specific case management, individualized Medical Nutrition Therapy, training and consultation on the medical, behavioral and emotional supports necessary for people with PWS.  The Project attempts to develop programs in local communities around the state for each individual.  These include programs for home, school and place of employment. The Project works to ensure all people in the lives of the individual are educated about PWS and its management.

OUR MISSION
The mission of the Prader-Willi Syndrome Project for the State of New Mexico is to identify individuals with PWS and to assist these individuals and their families in finding services to promote their health, allow them to choose and achieve their life goals and fully experience community life.

Project Director  –  Michelle Harmon
Project Nutritionist  –  Loretta Pacheco, MSN, LN
Project Case Coordinator  –  Penny Chavez

For more information, please contact The Project at (505) 243-3817 or Statewide (toll free) at (844) 302-6868 or contact Penny Chavez at (505) 243-3817 or email.

Current Medical Issues – Power Point Presentation
Schools & PWS – Power Point Presentation
2013 Update on Endocrine Complications in Prader-Willi Syndrome